Type 1 diabetic comes off insulin? What?!

First of all, I would like to begin by informing you that my agency representative F & I Associates has officially launched! As of Monday 4h September, F & I Associates went live! Super excited to see what the future holds with this agency and I have such a strong, positive faith in them and myself working together as a team. You can find out more about them via the website https://www.fiassociates.co.uk/ and you can also find my little face on there too! We are having an official launch party for them on Monday 11th September and I am very excited to get chatting to the other clients who I have already met most of and hopefully some Casting Directors too! Fingers crossed for some good news!

On a completely separate note, I saw an article this week which really caught my attention. The article was from the http://www.diabetes.co.uk website and was entitled “Johan Kotze stopped injecting insulin for his type 1 diabetes a month ago, but how is this possible?” As you can imagine, seeing an article like this absolutely blew my mind! For me, this is something that I didn’t think would be possible without something like a pancreas transplant. However, this is not the case for Johan Kotze.

With further reading into the article, it was brought to my attention that this is the second known case of an individual with Type 1 coming off insulin potentially due to a rare gene. The first individual being a man called Daniel Darkes. Is this the same case for Johan Kotze?

The article informed that Johan was diagnosed with Type 1 in 2011 when he was 46 years old and was immediately assigned to Lantus and NovoRapid which helped his blood sugar to stabilise after 3 months. (All as normal, as you would expect!) 3 years later Johan undertook a new exercise regime which saw a dramatic decrease in his blood sugar levels, which inspired Johan to make a very shocking decision earlier this year – to stop taking his background Lantus injection. As Lantus is a background insulin, it is injected to work alongside the fast acting insulin and aims to help to stabilise and improve blood sugar control. So ceasing to inject the background insulin is definitely a very bold move. I would never recommend this without discussion with your Diabetes team. However, Johan did discuss this with his team and it seemed like the right thing to do for him.

In August this year Johan had a meeting with his Diabetes consultant about his long acting insulin cessation. The consultant asked Johan to eat a high carb meal and not inject for it. (Personally, I would be terrified to do this as I know I would be feeling rather thirsty and ill afterwards! However, I am not one of the ones who posses this rare gene so it seems!) He then advised Johan to take a urine test 2 hours after eating the high carb meal so he could do a C-peptide test. A C-peptide test measures the level of peptide found in the blood. Peptide is usually found in amounts equal to insulin as they are both linked when first made by the pancreas. Two hours after the meal, Johan checked his blood sugar level and it read at 6.2mmols. This is astonishing! Johan has not injected any insulin since this day and continues to have good blood sugar readings. Amazing!

Johan informed that the C-peptide test did confirm that he was making a good amount of his own insulin again.

Well, what are the odds of that?! I am actually baffled. Johan has said that he believes that upping his exercise regime decreased his blood sugar levels and was the aid that he needed to allow him to gain the ability to regulate his blood sugars without the need for external insulin.

So do we think that this increased exercise regime has kicked the rare gene into action? Who knows? Very interesting indeed though. I can’t really imagine living my life injecting and then suddenly one day never injecting again. Of course, obviously, I would love for this to happen and to be able to live without injections, but it would be the weirdest thing in the world!

If you want to read the whole article then you can find it here: https://www.diabetes.co.uk/blog/2017/09/johan-kotze-stopped-injecting-insulin-for-his-type-1-diabetes-a-month-ago-but-how-is-this-possible/?utm_source=Communicator&utm_medium=Email&utm_content=Untitled1&utm_campaign=Lightning+strikes+twice%3a+Type+1+and+no+more+insulin&utm_dispatch%20ID=5877271&utm_email%20name=DCUK+NL+-+07%2f09%2f17

If anyone has any thoughts about Johan’s story, then please feel free to tweet me and we can discuss!

On my final note this week, if anyone has been watching Strike on BBC1 you may see me pop up in the background! I haven’t spotted myself in any of the first segment of the series entitled Cuckoo Calling but there are more to come, so I will definitely be looking out for myself!

Have a great weekend guys!


Published by diabetesandtheactor

Actress, singer and type 1 diabetic.

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